Monday, March 17, 2014

the shape of days...


here we are

5 weeks after the finger prick that changed all our lives

and our days are adopted a familiar shape















 


10 (or there abouts) finger prick BGL tests per day
(including 3 tests during the school day and ever popular 3am finger prick... )

4 insulin injections per day
(including one at school)

learning to be constantly aware of what food is to be/has been eaten
and when and what it means

learning to be constantly aware of how the body feels
and adjusting food/insulin to accommodate past, present and future activity

it's stressful
(for a mumma bear)

and tiring
(for both a mumma bear and her cubs)

but in and around finger pricks and counting carbs and insulin injections

and (sugar) highs and (sugar) lows

life goes on...


 






sass has been remarkably resilient
('aren't all kids' is the oft heard refrain...)
even though he's part choffed, part embarrassed
by all the attention that his determination and resilience has attracted...

(he's somewhat mortified by the 'rising star' bit....
he just likes to swim and has absolutely no olympic dreams
unless of course  'throwing-ball-for-dog-to-fetch' becomes an olympic sport...
)





“Tell me the story..
About how the sun loved the moon so much..
That she died every night..
Just to let him breathe...”

― Hanako Ishii



....





3 comments:

  1. well the 'life goes on 'bit looks fabulous .. the ordinary life .
    i did not realise you were so close to the salty waters edge. beautiful.
    how well your boy looks. there is always so much to be grateful for and so many ways the world shows us how deep is the love.

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  2. Goose bumps, Ronnie and a tiny tear shed for you and the Boyo, but above all huge admiration for Sass and his Mum, slogging it out day by day. He is such a trouper; you and Farmer Phil and EJ may be very proud of him, as are all your friends proud of you.

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  3. Oh Ronnie, I haven't been on the internet for a while and totally missed this post! I am sorry to hear about Sass's diagnosis but can see that you're all coming to terms with it. I have two hulking great nephews who are both injecting diabetics, diagnosed at 7 and 9. They're 20 and 22 now, at university, and have both walked the Kokoda Trail... they're fit, happy, healthy and spend their time studying, playing sport, drinking (albeit carefully, and in relation to diet management) and hanging out with their mates and their girlfriends! None of this changes the difficulties Sass and you face getting used to it all and managing his symptoms, but I wanted to put their stories out there for you because I can honestly say that after the initial shock wore off and they learned to inject themselves, recognise the signs and take responsibility for their health, it hasn't stopped or changed anything for them. I hope all is well with you and send you our love, Sara xxx

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thanks for all your lovely comments - your words are greatly appreciated xx